Autism Confidential

15

Autism Confidential shines a light on the hottest issues in the world of autism, including topics often shunned by conventional media. Who cares for autistic adults after their parents die? How can we fix our broken care system? What interventions help, or hurt? Join hosts Jill Escher, Amy Lutz and others from the National Council on Severe Autism as they take on the hardest questions of autism with leading thinkers and doers.

Recent Episodes
  • Episode #058 - Crisis Care for Severe and Profound Autism
    Jun 3, 2024 – 01:18:33
  • Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb
    Jun 3, 2024 – 01:13:01
  • Episode #056 - Sounding Off About Autism Month
    Apr 22, 2024 – 00:59:41
  • Episode #055 - Karen Fessel: Insurance Coverage for Severe Autism
    Apr 22, 2024 – 01:17:50
  • Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled
    Mar 4, 2024 – 01:23:55
  • Episode #053 - Seizures and Epilepsy in Severe and Profound Autism
    Mar 1, 2024 – 01:22:24
  • Episode #052 - National Council on Severe Autism Webinar, February 15, 2024
    Feb 19, 2024 – 01:41:27
  • Episode #051 - The Reauthorization of the Autism CARES Act
    Feb 12, 2024 – 01:18:58
  • Episode #050 - Girl Storm: A Stunning New Memoir of Profound Autism
    Nov 20, 2023 – 00:45:08
  • Episode #049 - A Musical Mind: The Story of Adam Mandela Walden, a Cellist with Severe Autism
    Nov 13, 2023 – 00:49:43
  • Episode #048 - Richard Edley, The Need for Reality-Based Programs for Adults with Severe Autism
    Oct 30, 2023 – 00:46:34
  • Episode #047 - Open the Floodgates! Mary Ogle of A New Leaf in Oklahoma
    Oct 23, 2023 – 00:49:09
  • Episode #046 - The Benefits of Residential Communities and the Need for Choice: Molly Nocon, CEO of Noah Homes
    Oct 15, 2023 – 00:42:07
  • Episode #045 - How to Be an Autism Advocate in Your State
    Sep 18, 2023 – 01:39:40
  • Episode #044 - Title: Autism Research Roundup, with Dr. Alycia Halladay
    Sep 11, 2023 – 01:09:40
  • Episode #043 - Battling the Vaccine-Autism Myth, with Paul Offit, MD
    Aug 7, 2023 – 00:35:33
  • Episode #042: Jackie Ceonzo: A Hero Serving Severe Autism in NYC
    Jul 31, 2023 – 00:44:36
  • Episode # 041 - Jill Gets Deluged by Questions
    Jul 24, 2023 – 00:32:44
  • Episode #040 - Susan Goldstein: A Champion for Autism in Florida
    Jun 26, 2023 – 00:42:39
  • Episode #039 - Sia's' "Autism" and What Does "Autism" Mean Anyway? A Double-Header
    Jun 5, 2023 – 00:55:28
  • Episode #038 - Dental Care for Patients with Autism, with Dr. Allen Wong, Part 2
    May 29, 2023 – 00:33:39
  • Episode #037 - Dental Care for Patients with Autism, with Dr. Allen Wong, Part 1
    May 15, 2023 – 00:35:23
  • Episode #036 - Traveling With Autism: Lara Sandora, Advocate, and Pernell Wint, Beaches Resorts
    May 1, 2023 – 00:57:19
  • Episode #035 - The HCBS Settings Rule, Part 2 with Melissa Harris, CMS
    Apr 24, 2023 – 00:46:21
  • Episode #034 - Medicaid Funding for Autism Services, Part 1 with Melissa Harris, CMS
    Apr 17, 2023 – 00:41:46
  • Episode #033 - Bridging the Divide
    Apr 3, 2023 – 01:11:20
  • Episode #032 - The Case for Profound Autism, with Dr. Lee Wachtel
    Mar 27, 2023 – 01:16:26
  • Episode #031 - A Rare Gem: Paul Aronsohn, New Jersey's Ombudsman for I/DD
    Mar 20, 2023 – 00:56:54
  • Episode #030 - The Film Beyond Takes Viewers into an Unimaginable World of Profound Autism
    Mar 9, 2023 – 00:52:36
  • Episode #029 - Just Say No to the Bullying of Autism Parents
    Feb 20, 2023 – 01:04:32
  • Episode #028 - Finding the Fun: Skiing and Sports with Severe Autism
    Feb 13, 2023 – 00:41:19
  • Episode 027 - Thriving with Severe Autism at Bittersweet Farms
    Feb 6, 2023 – 00:56:08
  • Episode 026 - TMS and Neuromodulation in Autism Treatment, with Dr. Manuel Casanova
    Jan 30, 2023 – 00:40:21
  • Episode 25 - Autism Controversies, with Dr. Manuel Casanova
    Jan 23, 2023 – 00:38:05
  • Episode 24 - The Autism Brain Is Different, with Dr. Manuel Casanova
    Jan 16, 2023 – 00:49:22
  • Episode 23 - The Truth About ECT in Autism, Part 3: Interview with Joshua Smith, MD
    Jan 9, 2023 – 00:37:39
  • Episode 22 - The Truth About ECT in Autism, Part 2
    Jan 2, 2023 – 00:31:16
  • Episode 21 - The Truth About ECT in Autism, Part 1
    Dec 26, 2022 – 00:30:35
  • Episode 20 - Stop the Censorship!
    Dec 19, 2022 – 00:27:03
  • Episode 19 - Medical Cannabis for Autism: Science, Practice and Policy
    Nov 14, 2022 – 00:43:59
  • Episode 18 - Autism: The POOP Episode
    Nov 7, 2022 – 00:35:30
  • Episode 17 - The Power Duo Teaching Kids with Autism to Swim
    Oct 3, 2022 – 00:37:29
  • Episode 16 - Wendy Fournier and Lori McIlwain: A Passion for the Safety of Autism Families
    Sep 27, 2022 – 00:32:55
  • Episode 15 - Kate Movius
    Sep 12, 2022 – 00:40:01
  • Episode 14: Mizpah Brown-Rich
    Sep 5, 2022 – 00:43:06
  • Episode 13 - Thomas McKean Is an Autism Self-Advocate Who Stands Up for Parents
    Jun 20, 2022 – 00:49:55
  • Episode 12 - Jill Barker Wants You to Understand Developmental Disability Policy
    Jun 13, 2022 – 00:46:19
  • Episode 11 - Michelle McFarland McDaniels
    Jun 6, 2022 – 00:33:18
  • Episode 10 - Unseen: Jess Ronne and a New Documentary about Extreme Caregiving
    May 24, 2022 – 00:30:52
  • Episode 9 - Lucy Kross Wallace on the Distortions of the Neurodiversity Movement
    May 23, 2022 – 00:37:42
Recent Reviews
  • MyElectricTypewriter
    Eugenics 101
    For those who are looking for content related to members of the Autistic community with the most intensive support needs (whether that describes you or someone you care for), steer clear of this podcast. Autism Confidential is a project of the National Council on Severe Autism (NCSA), a vile organization full of parents of Autistic children with intensive support needs who believe (among other abhorrent things) the following. 1) It’s a moral imperative to wipe the autistic neurotype (and, thus, Autistic people) out of the human gene pool (they explicitly stated this in a 2021 Medium post). Anyone who calls this belief what it is - eugenics - is no more than an “anti-preventionist” hater. 2) All Autistic individuals are either not disabled enough or too disabled to have a valid opinion on issues that impact themselves and their communities. Parents and caregivers of Autistic people with intensive support needs (and charlatans, like applied behavior analysis practitioners) are the only people who deserve a seat at the table with those with the power to allocate funding and set research priorities related to the Autistic community. 3) Speaking Autistic individuals with minimal support needs and no co-occurring intellectual disabilities are not really Autistic and are stealing their children’s labels and resources. Only Autistic people who are non-speaking, have intensive support needs and/or are intellectually disabled deserve a clinical autism diagnosis and any kind of support, resources or accommodations. 4) Although they flatly reject other conspiracy theories regarding the autistic neurotype (like the thoroughly debunked vaccine connection), they unapologetically traffic in conspiracy theories regarding unproven environmental causes (especially their president, Jill Escher). 5) The autistic neurotype should never be treated as a natural variation of the human experience. Autistic people should be treated as diseased burdens instead. 6) Instead of researching and paying for legitimate and ethical ways to support Autistic people, we should just pour all funding into pseudoscientific and abusive compliance training masquerading as support (e.g., applied behavior analysis). 7) Instead of researching and paying for ways to keep Autistic people with intensive support needs (including those who engage in aggressive or self-injurious behavior) in their own homes (or their family homes), we should force them into segregated housing or institutions. 8) Non-speaking or minimally speaking Autistics with intensive support needs are incapable of any complex form of communication or self-advocacy. They shouldn’t be granted access to alternative means of communication or be allowed access to independent or shared decision-making. I could go on, but I would be here all day. If any of the points above fill you with disgust, please avoid this podcast and anything else with the NCSA’s fingerprints on it. If you agree with even a single point listed above, congratulations on finding like-minded bigots to commiserate with.
  • SLO Independent
    Thank You
    Thank you for this discussion on a universally difficult and complex topic. I have a 20-year old adult son living with my wife and I in California. He has severe Autism and IDD. This podcast offers key insight and perspective for us to more effectively plan for his and our future.
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